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oh, Fuck. I have a Venous Leak- Invictus' thread

Can we kegels IF we got venous leak or erectile dysfunction?

I’m noticing that people saying they had success with Interventional Radiology or Vascular Surgery are not in the US. Does ANYONE have any idea where in the US there are good surgeons who can perform these procedures (I’m honestly still not really sure what the Interventional Radiologist does. I’ve heard it called a procedure, I’ve heard it called not a procedure).

I have Peyronie’s Disease and at 22 have severe ED, and I’m hoping maybe one of these operations could repair my problem. I have tried pumping, but it just seems to make me worse. I think I may try some light PE, but I’m worried to start, because any kind of rough handling of my penis always seems to make it worse. I feel that my condition is at a point where PE may be detrimental. I DO, however, plan to start using an AutoADS. I ordered it in the mail a few days ago. Any help will be appreciated.

Everyones experience of a normal erection is different, I can only relate mine. Previously I could not maintain, or attain an erection lying on my back, & I could only attain one in other positions if I manually pressed down on the dorsal vein with my finger. This allowed my glans to fill so I could feel pleasure, and it allowed me to kegel. I eventually was diagnosed with a leak from the deep dorsal vein. I had a doctor (interventional radiologist) put a coil in there to block off the vein, and my erections improved quite substantially.

Are they 100% better? I have always assumed so, but I really don’t know for I have nothing to compare it to.
For the record, my glans still inflate and deflate as I kegel. But it’s nowhere near as severe. In fact, beforehand I could not even kegel blood in there unless I pressed on the vein, it was like the kegel muscle was disconnected. Now I can actually feel a ‘kegel’, and push blood into my penis without using my hands.

Sometimes I still fail to maintain a good hard on, and my hardons are better in some positions rather than others. A cock ring still gives me a better erection, and more consistent glans expansion. Now, you gotta realise I basically pulled and beat the shit out of my dick as a 6 - 12 year old kid like you cannot believe. Squeezed it, tugged it, grabbed pulled it down between my legs, and crushed my legs together HARD to achieve a flaccid orgasm. I really feel I’m lucky to still have a dick and not some completely shrivelled up piece of grisle. I might still have some other underlying physical problems (maybe there was a leak somewhere else too, maybe my suspensory ligs are weakened, maybe I have some plaque, who knows) but all I can say is I’m much improved and the surgery for me was non invasive and a success.

If you need to know any specifics just ask.

Originally Posted by steinkill

The doctor said the leakage was mostly located on the deep dorsal vein. He wanted to use coils, but the leakage was so big he shut the entire vein. I still can see my dorsal vein, but I think your referring to the deep dorsal vein and I don’t think most people can see it.

See above reply about coils, and I don’t think I was under a sonar.

The improvements were immediate. It was actually everything, I never had a full erection, not even with rings, rubber bands, tadalafil, sildenafil, etc, but yea, the glans were the biggest problem, and now they do swell when flexing my BC muscle, but most of the times I lose some of the swelling. I think this is normal as mgus said.

I started PE’ing about two months after the surgery and it was gradual, I don’t think PE could cause damage if done correctly. Venous leakage or not if you go too hard you’re not going to have good erections, just follow your EQ.

They do swell, sometimes more, sometimes less, again like mgus said. They never get “rock hard” or really full but this is normal.

Invictus, have you ever tried a cock ring? This is can give you a good indication about a venous leak, try it out what your having an erection an see the difference, there will be a difference for someone that doesn’t has a venous leak, but if you do have, the difference will be significant, tell us how it goes.

Invictus, do it, it’s important, your glans should remain swell with out to much kegels and you will have a much stronger erection, if this is the case, you need to see a vascular surgeon.
During an erection, take the cock ring out and see if you glans doesn’t swell again (it should actually be kind of lifeless)
Try to use your finger to shut the dorsal vein during an erection, then kegel and see you glans swell, take your finger out and see if your glans are still swollen, if you can see the glans shrinking, it’s a venous leak, but you have to stay erect, not semi, try to do it when you gf is helping you.

Yep, this sounds pretty much identical to my experience. Exact same thing with the dorsal vein, & “lifeless” glans sums it up, my improvements post surgery were the same too. Congrats on your success!

Originally Posted by Yataghan50
Now, you gotta realise I basically pulled and beat the shit out of my dick as a 6 - 12 year old kid like you cannot believe. Squeezed it, tugged it, grabbed pulled it down between my legs, and crushed my legs together HARD to achieve a flaccid orgasm.

I also did this, which I think fucked me up even more. Right after I would orgasm, I would immediately beat off vigorously to achieve a flaccid orgasm. This is another of my bad habits that really fucked me up.


No use beating yourself up about this inflicting guilt on yourself won’t make it go away. Have you seen the urologist yet?


Speak softly carry a big dick, I'm mean stick!

I saw the urologist in the summer but didn’t really help anything. I wasn’t sure what I was looking for though, because at the time I didn’t recognize my bad symptoms and thought I was normal (I thought I had mild ED or something, Venous Leak wasn’t really on my mind). But the asshole was 2 hours behind and didn’t listen to a word I had to say. He just pretty much disregarded all my observations/opinions and told me I basically need to stop the PE. I can tell he was a scum bag doctor, because he instantly pushed the new “One-a-Day Cialis” on me, and disregarded penis vacuum pumps, or any natural method to cure ED problems.

Do you know how embarrassing it is, to go to a pharmacy to fill a Viagra/Cialis prescription, as a 20 year old? Sad part is, I probably don’t even have ED, but a venous leak, which my asshole urologist failed to even consider.

But I think I am going to go to my family doctor and talk to her about visiting an Interventional Radiologist, someone who can perform an embolization of my dorsal vein. But I have to read up a little on everything. I’m shooting for next week, i’ll keep everyone posted.


Originally Posted by invictus
asshole urologist

I guess that makes him a piss-poor doctor? :)


regards, mgus

Taped onto the dashboard of a car at a junkyard, I once found the following: "Good judgement comes from experience. Experience comes from bad judgement." The car was crashed.

Primary goal: To have an EQ above average (i.e. streetsmart, compassionate about life and happy) Secondary goal: to make an anagram of my signature denoting how I feel about my gains

Here is a post from my log. invictus - True Life: Diary of a Jelqer. It was written on 5.17.2008. You can click the link or read below.

Originally Posted by invictus
Thank you Shunga. I do still have an ED problem, I believe. I am perplexed though. I need to see a urologist and get a Doppler sonogram test, and I think I need to wear a cock ring. Yes I have made gains. I was at about 5.0 EL now I am about 5.3/around there, and my girth is probably at about 5.6. See, the problems with my measurements are that I they fluctuate so much. Sometimes I hit 5.5 EL and sometimes I am a little on the low side.

I just went to the doc and got some Viagra/Cialis, which improved my erections. But I think I really do need to get a cock ring. The more I have been reading about venous leakage the more I think that is the problem- my ex gf was really rough on me, and I liked it (I mean she used to squeeze my cock vigorously during orgasms, due to my liking).

Here is a link to a post from my log, after I saw the Urologist.
invictus - True Life: Diary of a Jelqer
I remember bringing up surgery and he really told me that they don’t work, right off the bat. He said there was really no cure, except pretty much the rest of my life on Viagra, and wearing a cockring. Fucking Deutsche bag. He failed to realize that I might even have a serious problem.



Last edited by invictus : 01-20-2009 at .

Originally Posted by mgus
I guess that makes him a piss-poor doctor? :)

Tonight, after realizing how much this doctor failed because of his arrogance and self-clouded mind, I sure would like to make him piss-rich. By pissing all over him after I get my leak embolized. I mean, I understand Doctors make mistakes, of course. This was just pure atrocity.


Originally Posted by invictus

Tonight, after realizing how much this doctor failed because of his arrogance and self-clouded mind, I sure would like to make him piss-rich. By pissing all over him after I get my leak embolized. I mean, I understand Doctors make mistakes, of course. This was just pure atrocity.

Is there another urologist you can see? Get a second opinion perhaps, book your appointment for the morning too. First in line. :)


I'm a big fan of 50 Cent, or as we call him in Zimbabwe, four hundred million dollars.

Reading your problems invictus is making me think that I may have a leak also. I just now realized that when ever I masturbate or get an erection to do some jelqing I put my thumb on top of my dorsal vein. My head also deflates very quickly if I don’t keep a hard kegel and some pressure on the top of my penis. Without a kegel or manual stimulation the tip of my penis will instantly start to go for the floor. Oh man I am worried now!


Starting 10/08 - 7.125" EL x 4.5" MSEG

As of 12/08- 7.5" EL x 4.75" MSEG

As of 1/19/08 - 7.75" bpel(previous 7.5" was due to inaccurate ruler) x 4.875" MSEG

Originally Posted by Mr. Bidnez
Reading your problems invictus is making me think that I may have a leak also. I just now realized that when ever I masturbate or get an erection to do some jelqing I put my thumb on top of my dorsal vein. My head also deflates very quickly if I don’t keep a hard kegel and some pressure on the top of my penis. Without a kegel or manual stimulation the tip of my penis will instantly start to go for the floor. Oh man I am worried now!


Being worried really helps, of course.

From another thread:

Originally Posted by mgus
“I remember going to the British Museum one day to read up the treatment for some slight ailment of which I had a touch – hay fever, I fancy it was. I got down the book, and read all I came to read; and then, in an unthinking moment, I idly turned the leaves, and began to indolently study diseases, generally…I plodded conscientiously through the twenty-six letters, and the only malady I could conclude I had not got was housemaid’s knee.”

Jerome K. Jerome, Three men in a boat

http://www.biochemist.org/bio/02906/0034/029060034.pdf


regards, mgus

Taped onto the dashboard of a car at a junkyard, I once found the following: "Good judgement comes from experience. Experience comes from bad judgement." The car was crashed.

Primary goal: To have an EQ above average (i.e. streetsmart, compassionate about life and happy) Secondary goal: to make an anagram of my signature denoting how I feel about my gains

Do some more reading through the threads if you really think you have a venous leak, and don’t be worried. Nothing to be worried about.

Mgus- Quite the cynic, aren’t you?


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