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Depression, Thyroid, Wilson's Temperature Syndrome

Originally Posted by whatever20

Did you go to one of the doctors listed as a Wilson’s Syndrome doctor? If so, could you explain your experience from start to finish? I have been waiting a long time to hear another patient’s story directly.


Yes, I did after exhausting myself dealing with normal time wasters including a 5 month wait for an endocrinologist. There is not enough empty space on a web forum to explain my story just concerning this tiny time in my life. I drive 95 miles North to go see the only doctor in my state.


“You see, I don’t want to do good things, I want to do great things.” ~Alexander Joseph Luthor

I know Lewd Ferrigno personally.

Okay so then all the other stuff you told me makes sense now. Had trouble following some of it.

So did you notice any difference? If so what? At least tell us of your experiences with the treatment.


I was gonna say, RootCap's hot. - kitten

A minor update: I got a call from the GI who I discussed Wilson’s Syndrome with, but I wasn’t around to get the call. Apparently he discussed it with the endocrinologist as well. I will call him tomorrow and see what happens.

Talked to the GI today, and as expected, he simply said “I don’t buy it.” when talking about Wilson’s Syndrome. He said there’s not much medical proof behind it, and that it seems like more of a homeopathic thing. After that, he said that he still recommends the anti-depressant idea.

Tomorrow, I have an appointment with a new PCP. I chose this physician a month or so ago (before I knew about Wilson’s), because he was listed on the Armour website for being an Armour prescriber.

So, I will talk to him tomorrow and see if he “buys into” the Wilson’s Temperature syndrome possibility. If he doesn’t I believe my last chance at solving this thing will be getting a referral from him to see one of the doctors listed on the Wilson’s official website, someone who has been trained in Wilson’s.

And if all this fails, the last resort will be going on the anti-depressant.

Any other suggestions would be greatly appreciated.

When you say your free and serum testosterone levels were slightly low or normal, could you be more specific? Many of your symptoms indicate low testosterone. Also, what were your TSH levels?

I’m hypothyroid and hypogonadic - low testosterone. I take weekly injections. I’ll never willingly do without testosterone again. There’s a hypogonadism group on yahoo that you owe it to yourself to check out. I think it’s MUCH more likely that your problem is low T, not wilson’s syndrome. Nearly every man, after the age of 30 or so, begins to see lower and lower testosterone levels.

The LAST thing you want to do is get on anti-depressants. The cure is worse than the disease. I’ll be glad to talk to you about it more if you think it’s a good idea.

http://health.groups.yahoo.com/group/hypogonadism2/


11/09 - Egms 6.375, Bpel 6.25; 9/10 - Egms 6.6, Bpel 7.0 1/12 Egms 6.6, Bpel 7.0

Originally Posted by whatever20
Talked to the GI today, and as expected, he simply said “I don’t buy it.” when talking about Wilson’s Syndrome. He said there’s not much medical proof behind it, and that it seems like more of a homeopathic thing. After that, he said that he still recommends the anti-depressant idea.

Tomorrow, I have an appointment with a new PCP. I chose this physician a month or so ago (before I knew about Wilson’s), because he was listed on the Armour website for being an Armour prescriber.

So, I will talk to him tomorrow and see if he “buys into” the Wilson’s Temperature syndrome possibility. If he doesn’t I believe my last chance at solving this thing will be getting a referral from him to see one of the doctors listed on the Wilson’s official website, someone who has been trained in Wilson’s.

And if all this fails, the last resort will be going on the anti-depressant.

Any other suggestions would be greatly appreciated.


I have an HMO, so my choices were limited. I could doctor hop and attempt to get a referral to an endocrinologist like I did, wait 5 months, pay my copay and have the cunt say oh it is all make believe, Only to waste my time further on tests over nothing which could even be associated with any symptoms.

Instead of further wasting your time with retards in the medical field, whom are never better than a car mechanic who just replaces parts on a vehicle until you stop complaining, instead come up with a plan.

I have a nurse practitioner now whom is a very slight pain in my dick. She will however react to another MD/DO’s findings. I took the Wilson Doctor in North jersey cause she is an MD. Even though I have to pay her out of pocket ($450 for a 90 minute first seeing), she is way cheaper than the Naturalpaths in NY, whom are a grand ($1k) for the same thing. The Chriopractor in PA cannot write the script directly, so he has to have some MD/DO do it for him for the compounded cytomel. During the expensive visit to the Morristow doctor, she actually gave me a fucking exam. Looking at my feet with these weird freckles and found I have problems with my legs and circulation. She wrote a script for everything she would do, I saw the Nurse practitioner and gave it to her who followed the instructions, thus finding:

Raynauld’s in my legs/feet http://en.wikipedia.org/wiki/Raynaud%27s_phenomenon
Venal insufficiency http://www.vascularweb.org/patients…ufficiency.html
Atherosclerosis in my legs http://en.wikipedia.org/wiki/Atherosclerosis
Hypertension http://en.wikipedia.org/wiki/Hypertension

I have to go see the NJ doctor next week. I am off cycle on my compounded cytomel and a new month packet will hit by Monday or so.

The concept to any sickness is you have to be your best advocate. Never be afraid to tell a doctor to say fucking die in a slow fire to their face. It helps to be 7ft tall and wild eyed, but my results are always flawless. That means you have to do all the prep and leg work cause of the retards that work in the medicial field.

Filling out a questionnaire, LEGIBLE Copies of all TESTING done already, and all your scripts.

The Jersey doctor which is 95 miles North and West of me practices Integrative medicine, so if it isn’t Wilson’s proper she can still help you if it is some ho-hum testerone deal, which is more popular as of late.

It costs me $150 for a month or so of the Cytomel, I don’t even bother to run it through my insurance cause they will say no always and delay it getting to me. I still come out ahead. I also spend about $200 for a half hour office visit and some weirdo doctor only supplements every six to eight weeks. Money is tight now, but not worth the unproductively of not doing anything cause of that cost.


“You see, I don’t want to do good things, I want to do great things.” ~Alexander Joseph Luthor

I know Lewd Ferrigno personally.

Originally Posted by RootCap

Okay so then all the other stuff you told me makes sense now. Had trouble following some of it.

So did you notice any difference? If so what? At least tell us of your experiences with the treatment.

I feel less shitty, much less shitty all the time. Not good yet, but on the track. Some people will transform on one day’s of pills, according to the doc I see. Others take up to 5 full cycles with a 90% success rate.


“You see, I don’t want to do good things, I want to do great things.” ~Alexander Joseph Luthor

I know Lewd Ferrigno personally.

Dammit, I missed my confirmation call with this new PCP, so they cancelled my 1-hour time slot. Next opening is Feb 8th, so I took that one.

Update:

Went in to my new pcp about 2 weeks ago, and things seem OK so far. He definitely seems like he is willing to spend more time talking to me, which is one of the main things I needed in a new doc. The only problem was that he did not have my old tests to look at. I had to sign a release form and I am going to call him on Monday to see what he has to say. The old tests, like I said, included TSH, T3, Testosterone, and others.

The one thing I was hoping to hear from him (which I DID hear from him, thankfully) is that he understands that what might look like a “normal” thyroid level for most people might not be ideal or good for me. So, I will see what he says on Monday.

In the mean time, I have been doing more research over the Internet as usual. I came across Candida - the yeast infection that can make it’s way into the intestines and cause digestive problems and problems with sex drive. The most common symptoms of candida seem to be the ones I have.. Brain fog, fatigue, digestive problems, acid reflux, lack of sex drive, food intolerances, etc. I came across a product called Threelac that I may purchase if things get better for me financially (they run about $50 for a months supply).

That’s about it for now. If anyone has experience with candida or any other ideas, it would be greatly appreciated.

I will make another update when I speak to the PCP on Monday.

Any updates?

Reading this thread makes me hate narrow minded doctors even more!


I'm a big fan of 50 Cent, or as we call him in Zimbabwe, four hundred million dollars.

i went in and got a colonoscopy with the new GI. didnt find anything wrong.

i have another appointment with the pcp coming up. im going to tell him flat out that i want to do t3 supplementation. if he doesnt accept the idea, i am going to a naturopath who is trained in wilsons syndrome.

i will be sure to update again

A new update for those who have been following..

Finally a POSITIVE development!

I decided to finally go to an integrative medicine specialist. An MD, he specializes in solving problems that conventional medicine can’t.

To make a long story short, he discovered that I have a parasite (I’m not sure which kind specifically), a magnesium deficiency, and some excess lead and aluminum in my brain.

He gave me an acupuncture treatment for the constipation symptoms, ran some IV to draw out the unwanted minerals, and put me on a magnesium and fish oil supplement. He also put me on an anti-pest medicine called Biltricide. The day I started Biltricide (the day after the appointment), I could feel a battle waging in my gut and kidney area. When I got home from work I had to lay down for a while because I felt pretty banged up from the medicine.

But later that night, I finally felt great, and almost back to normal. As far as my mood and energy, I feel FANTASTIC. Basically how I felt before all this happened. However, the digestive problems are still there, although not quite as bad as before, there is still some progress to be made. My sex drive is still pretty low. I am hoping that my body is just going through a die-off stage, as most patients do when they have some type of problem involving things like parasites, candida, infections, etc.

A lot of people who I talked to are skeptical about the guy. In fact, almost all of them are. Mostly because of the guy’s diagnosis technique. He uses a traditional Chinese method that involves quantum physics and reading the body’s natural projection of energy. I was skeptical too, but my family members who went to him have gotten better, and I feel MUCH better after just 1 visit. I am confident that I will get 100% better very soon. However, I am not yet ready to say “I told you so” to the skeptics, and to the doctors and so-called “professionals” who have failed me. I should mention that as the doctor found the parasite (very soon into the appointment), he said to his assistant: “you know what the problem is with gastroenterology nowadays? They just wana scope. They become plumbers. They don’t want to find problems in the gut, they just want to look at it.” THANK YOU.

If I have learned one thing thus far, it is that I should have gone to an integrative medicine specialist sooner. As soon as the conventional doctors tried to put me on an anti-depressant, that should have been my last appointment with a conventional doctor. I can’t even begin to explain how many times I was literally pouring my soul out to these doctors, only to look up and see them take a glance at their watch 10 minutes into the appointment. I really feel that SO MANY people could benefit from this doctor, and integrative medicine in general.. But unfortunately it is not covered by most insurance companies.

Looking ahead, I have another appointment coming up in a week and a half. At that point I’ll start the 2nd dose of the Biltricide. I am really confident that great things are to come.

Thanks to those who have been checking for updates and who have helped me get through this!

Congrats, whatever20!

Two comments:

1. you deserve to find solutions, because you are persevering and taking your health in your own hands by doing all of the research
2. thanks for documenting the journey; I am sure someone else will benefit

It seems strange that you don’t know the parasite? Can you look into that and post it here? Also, regarding your guy using “quantum physics and reading the body’s natural projection of energy” for his diagnosis, well, you can count me among the folks that think he is a quack. But who cares what us guys on the sidelines think, if it works, it works!


My Before and After pics -- .5" gain...

Another update. Since my last post, I have generally felt good.. BUT..

I have recently felt more of the symptoms that I had before going on the parasite med. Sore throat, depression, severe constipation, brain fog, fatigue, etc. I went on another round of the Biltricide med. On November 1st I took the first dose. 2 weeks later, I felt the symptoms again. On about the 14th, I took the 2nd dose. And here at the end of the month, I am feeling symptoms again.

Doc has called in a prescription for another round for me. Luckily my insurance covers it. I am hoping this kills it off for good.

Also found out that I have H Pylori.. A separate but somewhat related problem. This is why I am having stomache problems, likely due to the ulcers h pylori can cause. Current treatment is some peculiar audio frequency treatment. If this doesn’t work, I will need to go on a PrevPak, a very strong double antibiotic with an acid reducer.

I will post again after this round of parasite med.

What’s the name (and type) of the parasite?


I'm a big fan of 50 Cent, or as we call him in Zimbabwe, four hundred million dollars.

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