Maybe it’s not a matter of what strangers can do, but more a matter of people not trying to shut the person down. It can be therapeutic to just talk through some of this stuff as it’s happening, and helpful to others when people document their experiences. The OP has documented everything very clearly, and the progression of the thread is coherent and informative. If people take some pieces of this thread, put it all in a list and break up the progression, it makes it sound like something it isn’t.
From the beginning, the underlying, main symptoms have remained, making improvements or getting worse after certain physical activity. There has been speculation about what they could be, but it comes in response to physically noticing or seeing them.
One of the most inconsistent things would have been the doctors, contradicting one another, etc. and I think that is what he is working on right now, while just keeping people updated on it.